The EBMRF is a volunteer, non-profit Foundation dedicated to helping medical scientists learn more about EB, its causes, the development of successful treatments, and ultimately, its cure. As the leader in research funding, our continued goal is to raise awareness and funds through special events, projects and the media.

April 3, 2011
Guests were treated to a fun family afternoon with the private screening of Universal's HOP co-hosted by James Marsden and Kaley Cuoco , while attendees Brad Pitt, Skeet Ulrich, Elizabeth Perkins, Adam Sandler and others brought their families to enjoy the movie, with fabulous treats from Blowfish and delicious tastings from Bolthouse Farms, A Sweet T., Along Came Mary,Pirate Booty and Polkatots Cupcakes. Click here to see photos from the event.
Ride. Sweat. Support. Hydrate.
On October 15, 2012, 54 riders did just that and helped raise $2,900 for The EBMRF. Thanks to Kaley Cuoco for co-hosting the event and to everyone who gave of their time. And sweat.
Pizza for EB! - November 26, 27
The EBMRF raised $1,000 during EB Awareness week with CPK. Friends and family joined The EBMRF for 2 great days of pizza and fun!
EBMRF is on a Roll! - November 13th
Old Navy Rock & EBowl was attended by over 200 bowlers ready to get a strike or spare for EB—Families got the chance to bowl next to celebrity supporters Courteney Cox & David Arquette, James Marsden, Josh Hopkins, Scott Foley, Kaley Cuoco , Allison Janey and others while munching on PopChips and pizza.
Click here for photos of the event
La Cachette Bistro - February 20th, 2010
Guests waved Bonjour!, sipped champagne and bid on amazing auction items as they tasted the menu from renowned French chef Jean Francois Meteigner who hosted a delicious brunch at his new La Cachette Bistro in Santa Monica.
Click here to see photos from the event.
Malibu Picnic - June 28th, 2009
The beautiful outdoors and ocean views were the backdrop of our Family Picnic at The Lumber Yard in Malibu.
Sponsored by Sinupret & Yogen Fruz, the event included kids activities, great food, and fabulous shopping. Hosts James Marsden, Courteney Cox & David Arquette joined other celebrities and families in a fun day to raise funds for the EBMRF.
Click here to see photos from the event.
EB Rocks The Laserium! - June 23rd, 2009
The EBMRF and 250 supporters took a trip back in time at the new Laserium Show in Hollywood to experience the sights & sounds of classic rock music and an awesome laser show. The event raised over $9,000 for EB research.
GivEBig Event - March, 2008.
The EBMRF was joined by celebrity supporters Jennifer Aniston, Orlando Bloom , Courteney Cox, Eva Longoria, Kate Beckinsale, James Marsden, Jessica & Ashlee Simpson, Casey Affleck, Rashida Jones, Eve and others to celebrate the launch of their GivEBig campaign to raise $1 million. Thanks to Stiefel Laboratories' generous donation, the night was a huge success! Executive Vice President, Todd Stiefel, made the surprise announcement at the event via phone to co-host Ken Paves, confirming that the Company would match any donations up to $1 million. The private event was held at Beso in Hollywood and brought out supporters for an evening of good food, good music and giving back. The event, which was filmed for Oprah, was highlighted on her show the following week and helped bring EB into the spotlight!
View Oprah video
Read People article
Read InStyle article
CelEBration On The Pier - September, 2007
The EBMRF took to the water as we hosted our First Annual CelEBration On The Pier in Santa Monica on September 29, 2007, hosted by Courteney Cox & David Arquette and KINERASE-Games, rides, music and entertainment awaited the over 700 guests who attended. Guests included Adam Sandler, James Marsden, Kate Beckinsale, Kyle Chandler, Dermot Mulroney, Catherine Keener and others. It was a great day for EB families!
Click here to see photos from the event.
Coach Event - April, 2007
COACH once again partnered with the EBMRF in Los Angeles to host a luncheon for their new fragrance-The event drew over 200 guests, including celebrity supporters Courteney Cox & David Arquette, Catherine Keener, Jacinda Barrett, Eva Longoria, Nicolette Sheridan, Demi Moore and others. Over $50,000 was raised for EB research! Check out the coverage from US Weekly.
Click here to see photos from the event.
Private Evening with Vacheron Constantin - November, 2006
Vacheron Constantin hosted a private evening under the stars for more than 250 guests, who came to listen to Platinum Recording artist, John Legend, while also helping to raise funds and awareness for EB. Vacheron Constantin presented a check for $100,000 to the EBMRF. Guests included Jennifer Aniston, David Arquette, Rebecca Romijn, and Holly Robinson Peete among others. Our many thanks to VC and all who came out to support us.
Click here to see photos from the event.
Read InStyle article
Hosted dinner with Eva Longoria - Nov, 2006
On Nov 2nd 2006, Desperate Housewives star Eva Longoria, hosted an intimate dinner to benefit the EBMRF. Through hers and her guests' generosity, we were able to grant wishes to many EB families with special needs such as strollers, computers, health care items and sewing machines (to make shoes), in addition to sending 10 kids to Camp Wonder!
EBingo - August, 2006
The EBMRF partnered with Kinerase to host 300 guests for an outrageous evening of Drag Queen EBingo at the Comedy Store in Los Angeles. Reese Witherspoon, Courteney Cox & David Arquette, Ricki Lake, David Spade, and other supporters enjoyed a hilarious evening of Bingo, a silent & Live auction and other surprises, raising almost $200,000 for the EBMRF. Our sincere appreciation to Along Came Mary Catering, The Comedy Store, Kinerase and all our guests.
Read Access Hollywood transcript
Read LA Mag article
Read LA Times article
Read Angeleno article
Coach Store Opening - Sept, 2006
COACH hosted a luncheon for the opening of their new Beverly Hills store as a benefit for the EBMRF. Shoppers delighted in the fun filled afternoon with handbags, clothing and accessories all under one roof.
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Charlie & The Chocolate Factory - July, 2005
Courteney Cox Arquette and David Arquette, along with Kinerase and the EBMRF hosted a party and benefit screening of the new Charlie & The Chocolate Factory, starring Johnny Depp. The event, which garnered much media attention was a sold out, celebrity filled event and raised over $190,000 for research.
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Silverspoon Hollywood Buffet - June, 2005
The Silverspoon Hollywood Buffet played host to the EBMRF as the beneficiary of its exclusive event in Beverly Hills.
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