The EBMRF is a volunteer, non-profit Foundation dedicated to helping medical scientists learn more about EB, its causes, the development of successful treatments, and ultimately, its cure. As the leader in research funding, our continued goal is to raise awareness and funds through special events, projects and the media.

The EBMRF has partnered with Lilly Pulitzer clothing to commemorate their 50 years in Fashion with their "A Colorful Cause Program". Their Spring '09 line will feature clothing designed for adults and children by Brooke Shields, Gwyneth Paltrow, Bridget Moynahan, Catherine Bell, Angie Harmon, Elisabeth Hasselbeck, Marcia Cross and Debra Messing. Look for it exclusively in Lilly Pulitzer stores and online at www.lillypulitzer.com. A percentage of the sales from these designs will go to the EBMRF and they have also made a generous donation to our cause.