The EBMRF is a volunteer, non-profit Foundation dedicated to helping medical scientists learn more about EB, its causes, the development of successful treatments, and ultimately, its cure. As the leader in research funding, our continued goal is to raise awareness and funds through special events, projects and the media.
The EB Community relies on a vast network of families, medical professionals and researchers to share their knowledge about daily wound care, research updates and educational information. The following are a few resources you can use to learn more about EB:
National Rehab (NR) provides the EB Nurse website (www.ebnurse.org) as a source of information for the EB community.
A guide for families of EB children
An informational brochure (pdf)
A guide for parents and schools (pdf)
The Official Patient's Sourcebook on Epidermolysis Bullosa by James N. Parker, MD and Philip M. Parker, PH.D, Editors. Published by Icon Health Publications.
To reach the Southern California Support Group, contact: Gloria_lira@hotmail.com