Welcome to the EB Medical Research Foundation Website
WebNotes
Exciting Research News!
Through a Matching Grant with The JGSF and The University of Minnesota, The EBMRF has successfully funded a $900,000 campaign for the gene therapy work of Dr. Jakub Tolar, which will allow him to advance his cutting edge research for EB.
EBMRF joins forces with JGSF to create new EB Consortium
EBMRF awards $150,000 grant
Exciting News! The EBMRF has awarded a $150,000 grant to USC's Dr. David T Woodley and Dr. Mei Chen for their ongoing research of protein replacement therapy
**Update** Dr. Woodley & Mei Chen's research is being brought to market, in part, through the EBMRF's early stage research funding and ultimately through Shire Pharmaceutical's recent acquisition of Lotus Tissue Repair. Lotus Tissue Repair was a venture-backed company that raised $35 million to bring USC’s protein replacement therapy to the EB community.Oprah's Big Give
The EBMRF's GivEBig with Eva Longoria and other EB supporters was featured on Oprah and raised $1 million!
Featured Product
We are thrilled to announce the launch of our new Gorjana line of EB jewelry which is now available. Check out these beautiful necklaces and bracelets, made exclusively for The EBMRF. 100% of proceeds will benefit The EBMRF so they’re a great idea for Mother’s Day gifts or for any occasion. Please share this with friends and family. Prices range from $40-$60. Order now »
