The EBMRF is a volunteer, non-profit Foundation dedicated to helping medical scientists learn more about EB, its causes, the development of successful treatments, and ultimately, its cure. As the leader in research funding, our continued goal is to raise awareness and funds through special events, projects and the media.
Honorary Advisory Board
Jennifer Aniston
Courteney Cox-Arquette & David Arquette
A. Scott Anderson, M.I.S. - President and CEO, Zions First National Bank
Ally Bernstein-Ally B. Entertainment
Cynthia & Peter Dante
Larry M. Daines, LL.B. - Ketchum Equity
Jill & Brad Grey - Chairman & CEO Paramount Pictures
David P. Gardner - President Emeritus, University of California; President Emeritus, University of Utah
Orrin G. Hatch - United States Senator (R-Utah)
Brad Pitt
Brooke B. Roney - Senior Vice President, Nu Skin Enterprises, Inc.
Harry Reid - United States Senator (D-Nevada)
Gwen Stefani & Gavin Rossdale
Jackie & Adam Sandler
Steve Young - NFL Hall of Fame, Forever Young Foundation
Board of Directors
Jerry J. Joseph - Chairman
Lynn Anderson - President & Founder
Andrea Pett-Joseph - Executive Vice President
Paul J. Joseph - Chief Financial Officer
Carol Pett - Secretary
Gary Anderson, LL.B - Director
Kathy Knudsen, Administrative Assistant
Dennise Joseph, Administrative Assistant
Scientific Advisory Board
Alfred Lane, M.D.
Professor and Chair, Department of Dermatology
Stanford University School of Medicine
Eugene A. Bauer, M.D.
CEO Neosil, Inc.
Suephy C. Chen, MD, MS
Assistant Professor
Department of Dermatology
Emory University
Anthony J. Mancini, M.D.
Associate Professor of Pediatrics and Dermatology
Northwestern University Feinberg School of Medicine
Head, Division of Pediatric Dermatology
Children's Memorial Hospital
Chicago, IL
Paul Khavari, M.D.
Professor of Dermatology
Stanford University School of Medicine
Peter Marinkovich, M.D.
Associate Professor of Dermatology
Stanford University School of Medicine
Ronald W. Cotliar, M.D., F.A.A.D
BC, Dermatology, BC, Pediatric Dermatology
Clinical Professor of Dermatology
David Geffen School of Medicine, UCLA